Applying the International Classification of Functioning-Children and Youth Version to Pediatric Neuro-oncology.

Abstract

Given the increased survival rates in patients with pediatric central nervous system tumors, late effects such as treatment- and/or illness-related neurologic sequelae as well as neuropsychological deficits and social difficulties have moved into focus in follow-up care. In order to provide personalized treatment recommendations for pediatric brain tumor survivors, it is crucial not only to assess cognitive impairments but also to measure a patient's functional deficiencies, for example, restricted participation in everyday social activities. Thus, this article introduces the International Classification of Functioning-Children and Youth version (ICF-CY) as a conceptual framework for quantifying functional limitations and informing long-term care in pediatric neuro-oncology. A standardized self-report and proxy-report questionnaire for measuring participation is briefly discussed and specific recommendations based on so-called core sets for clinical practice in pediatric neuro-oncology are provided.

• Authors: Thomas Pletschko, Anna Felnhofer, Agathe Schwarzinger, Liesa Weiler, Irene Slavc, Ulrike Leiss
• Journal: Journal of child neurology (J Child Neurol) Vol. 32 Issue 1 Pg. 23-28 (01 2017) ISSN: 1708-8283 [Electronic] United States
• PMID: 28257280 (Publication Type: Journal Article, Review)

Topics

• Brain Neoplasms (classification, complications, diagnosis, psychology)
• Child
• Cognitive Dysfunction (classification, diagnosis, etiology)
• Humans
• Psychological Tests
• Severity of Illness Index