A snapshot of the adult spina bifida patient - high incidence of urologic procedures.

Abstract

INTRODUCTION:

To describe the urologic outcomes of contemporary adult spina bifida patients managed in a multidisciplinary clinic.

MATERIAL AND METHODS:

A retrospective chart review of patients seen in our adult spina bifida clinic from January 2004 to November 2011 was performed to identify urologic management, urologic surgeries, and co-morbidities.

RESULTS:

225 patients were identified (57.8% female, 42.2% male). Current median age was 30 years (IQR 27, 36) with a median age at first visit of 25 years (IQR 22, 30). The majority (70.7%) utilized clean intermittent catheterization, and 111 patients (49.3%) were prescribed anticholinergic medications. 65.8% had urodynamics performed at least once, and 56% obtained appropriate upper tract imaging at least every other year while under our care. 101 patients (44.9%) underwent at least one urologic surgical procedure during their lifetime, with a total of 191 procedures being performed, of which stone procedures (n = 51, 26.7%) were the most common. Other common procedures included continence procedures (n = 35, 18.3%) and augmentation cystoplasty (n = 29, 15.2%). Only 3.6% had a documented diagnosis of chronic kidney disease and 0.9% with end-stage renal disease.

CONCLUSIONS:

Most adult spina bifida patient continue on anticholinergic medications and clean intermittent catheterization. A large percentage of patients required urologic procedures in adulthood. Patients should be encouraged to utilize conservative and effective bladder management strategies to reduce their risk of renal compromise.

• Authors: Joceline S Liu, Alyssa Greiman, Jessica T Casey, Shubhra Mukherjee, Stephanie J Kielb
• Journal: Central European journal of urology (Cent European J Urol) Vol. 69 Issue 1 Pg. 72-7 ( 2016) ISSN: 2080-4806 [Print] Poland
• PMID: 27123330 (Publication Type: Journal Article)